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twenty five years

The quality of care given to women in hospital and general practice can have a major impact on their experience and their memories of pregnancy loss. The Miscarriage Association offers training and consultancy to healthcare professionals and works with key organisations to promote sensitive care for patients who miscarry..

 

Lesley Allan

"People didn’t use to ask what had happened to their babies" - Lesley Allan
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‘As a newly qualified staff nurse on a gynae ward, I was especially interested in the care that women experiencing pregnancy loss received. It seemed to me that ensuring that sensitive disposal of the pregnancy was offered to all women, regardless of the gestation of their pregnancy, was an important part of that care.

‘Although I felt like a lone voice, I went ahead and wrote a protocol for sensitive disposal and managed to negotiate with my management to offer it at all gestations.

‘I thought that was the end of the story, but then I was invited by the RCN Gynae Nurses Forum to join a committee charged with developing the first national guidelines on sensitive disposal, designed to address inconsistent practices around the UK.

‘Those guidelines were published in 2000, but after that came the real work of making sure they were implemented, and I worked with The Miscarriage Association to promote the guidelines at a series of special conferences for health professionals.

‘I am now involved in revising and updating the guidelines, working very closely with Ruth Bender Atik of The Miscarriage Association. Nurses look after women while they are miscarrying, but The M.A. has contact with them afterwards and we really need to know what women think and feel about their treatment.

‘I hope the work I have been involved with has empowered people to talk about issues previously seen as unmentionable. Now I want to make sure that practice keeps up to date.’

 

Key achievements:

conferences and training
• presenting our research on risk factors for miscarriage to the European Society for Human Reproduction & Embryology’s winter symposium in Brussels

• co-producing a tutorial on Breaking Bad News for the Royal College of Obstetrics and Gynaecology’s on-line training and tutorial system

• contributing to the launch of the new SANDS Guidelines Pregnancy Loss and the Death of a Baby with a presentation on miscarriage

• training sessions for staff at Kings College and Kettering General Hospitals on caring for patients with pregnancy loss

• a training pack for service users – people who want to represent the patient perspective on pregnancy loss in local NHS Trusts

collaboration

• working with the Royal College of Nursing and the Institute of Cemetery and Crematorium Management to revise and update guidelines on the sensitive disposal of fetal remains

• active links with other pregnancy/ maternity charities, the Association of Early Pregnancy Units and the Royal Colleges of Nursing and of Obstetricians and Gynaecologists

consultancy
• acted as advisors on five
research proposals; advised on
three NICE guidance documents
and two patient information
leaflets; and provided input for
two sets of professional
guidelines and the Healthcare
Commission review of maternity
and pregnancy care