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twenty five years

Pregnancy loss can be even more distressing when parents are faced with making difficult choices. Clear information, support and time can help them gain some sense of control in stressful circumstances. That’s why The Miscarriage Association provides accurate and understandable
information about both the facts and the feelings of pregnancy loss.

Key achievements:

staffed helpline

• responding to a wide range of questions on pregnancy loss, providing clear information and clarifying confusion

leaflets

• publishing 25 leaflets, plus factsheets and booklets on aspects of pregnancy loss

• over 61,000 leaflets ordered by hospitals, clinics and individuals

• leaflets also downloaded from our website

accessibility

• a new leaflet for profoundly deaf people; and a new illustrated leaflet for people with learning disabilities

• seven bi-lingual leaflets, including a new Polish-English version in response to demand

• all leaflets printed in clear typeface and available in large print and on our website

miscarriageassociation.org.uk

• a well-used resource for those seeking information, support and comfort, recording an average of 16,477 visits per month

• ranked highly on all major search engines

• consistently given high approval ratings by visitors, with feedback informing content and design

• recognising under-reporting of leaflet downloads and incorporating a new tracking system for 2008/09; anticipating 5,000 leaflet downloads per month

research

• producing and promoting a layperson’s summary of research findings on risk factors for early miscarriage

Ian Every

 

"‘Hospital information wasn’t very helpful’" - Ian Every
open

There’s information and information. When my wife Michelle was admitted at 20 weeks to deliver our fifth baby, who had apparently died some weeks earlier, we were given information about our choices, but it wasn’t very helpful.

While going through labour, mostly alone, we were invited to make various decisions – cremation or burial, funeral arrangements, writing in a memorial book – and felt pressured to commit ourselves then and there.

We decided on cremation, with no particular service, and to recognise the death in our own way at home. Now I am not sure we made the right decision. Having learned how our children deal with sadness, a ceremony might be our preference now.

It wasn’t until we read The Miscarriage Association’s information that we realised it would have been okay to have gone home and made these crucial decisions later. This knowledge would have put us in a stronger position at the time.

I don’t think men know how to react after miscarriage and how much they might need to talk. Because I was open about our loss, several blokes took the opportunity to talk for the first time about their own experiences of miscarriage.

Being interviewed for The M.A.’s short film helped me consider not just my own feelings but what other men had gone through and I am now considering joining Michelle as a telephone volunteer for The M.A.